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Cochlear Implants, hearing loss and more! I carry an interesting perspective: someone who had normal hearing growing up, lost it all slowly as an adult, then regained it with cochlear implants. So I'm deaf, but I can hear - a true miracle. If you'd like to know more about me and my bilateral cochlear implant experiences right away, my two books have a wealth of information - see the links below. Check out the list of upcoming events too - perhaps one day we'll get to meet!


Wednesday, January 25, 2012

Cochlear Implant Miracles: Quiet or Silent

We had a picnic today, somehow managing to find an idyllic spot in the woods that no one else had discovered.  We sat at a picnic table in a covered pavilion, laid out our luncheon goodies, and sat facing the woods.

This was Florida, so we were surrounded by varieties of palms and other tropical trees.

There was no one else there - not a soul.  It was then that I remarked, "It's quiet here." 

And with that remark, my mind began pondering what made it "quiet."  I didn't really hear anything - but yet, it wasn't silent.  There was a slight rustle of leaves and the whisper of a breeze - enough to connect me to this environment.   

I took off my cochlear implant headpieces, and the difference was stark.  It was dead silent - the connection to my surroundings had been broken.  And so, in this simplest of activities - a casual picnic in the woods - I realized that there is a vast difference between quiet and silent.

Thursday, January 19, 2012

Cochlear Implant Miracles: Hearing While Wet

The manufacturer of my cochlear implant, Advanced Bionics, has just announced a new processor that is waterproof.  Called the Neptune, it has an industry rating of IP68, which means that it can be immersed in water, so is suitable for swimming.  There has been a lot of discussion about how this is wonderful for children, so they can listen and speak during bathtime and water play - and how the processor is also easy to use for water sports. But this all got me thinking about my own  experiences with hearing and water over the past 40 years (26 years with hearing aids, 14 with cochlear implants) - and the impact of having to remove hearing aids and cochlear implant processors when in and around water.

The experience that my family remembered instantly when I mentioned this subject was the time we were at a beach on the Gulf coast of Florida.  I was wading in the water, no hearing aids on - and suddenly my daughter, who was about 5 years old at the time, yanked me out of the water.  My husband saw a fin that he thought was a shark, but I couldn't hear him calling me - but my daughter saw and heard it all, and was close enough to act.  It turned out that the fin belonged to a dolphin, but the vulnerability of being deaf when wet was graphically demonstrated that day.

I used to swim laps at the Y, but always had to tell the lifeguard that I wouldn't hear his whistle because I couldn't hear without my hearing aids.  I pretty much gave up swimming because I just wasn't comfortable swimming while deaf.  Then, of course, there was the time that I jumped into a pool with my hearing aid on.  I only made that mistake once in my life.

I also shied away from swimming when family and friends were around.  It just wasn't worth it to me to be cut off from conversation and communication just to be wet, watching others frolicking and laughing together.  So swimming with others ended as well.

There were other water activities I did participate in - as I loved whitewater rafting (only up to level 2, with a teeny bit of level 3, maybe).  I had to leave my hearing aids on shore, of course - and on a wonderful trip down the river rapids in North Carolina, we had a guide in the back of the raft, who was shouting out paddling instructions. We knew I wouldn't hear him, so we arranged to have me sit behind the front paddler, so I could imitate the paddling motions.  I was happy to be able to participate, but I still remember feeling "disabled."

We did the same thing down the Colorado River (sounds adventuresome, but in July, it's totally tame.) We had a guide again, and this time I could swim off the raft - silent splashing again.

Another variation was tubing down a river - a wonderful thing to do in the heat of the summer.  But again, with the hearing aids left on shore, another silent activity - cut off from the banter of the others in our group. 

We even did a wonderful river pool at one of the resort hotels we visited years ago in Puerto Rico - Cerromar Beach Resort River Pool (see the middle photo).  I had to do that one deaf too - in a tube that followed a snaking man-made river, going under waterfalls, and ending up in a swim-up bar, with a fabulous view overlooking the beachfront!  It was amazing - except done in isolating silence.  And someone else had to order my Coco-Loco for me.  [I just did a Google search for SWIM-UP BARS  - and - oh my goodness, there are so many now!] 

Same situation with water parks - all done deaf - even though I was the parent, and needed to supervise my children.  The roles were reversed as my family members kept an eye out for me, knowing I wouldn't be able to hear safety alerts, instructions, or anyone talking to me.

We did river rafting in Israel as well - down the Jordan River.  I watched the scenery, but couldn't hear anything our guide was telling us.  I think they filled me in later, but that wasn't quite the same.  On a return trip to Israel, I opted out of that Jordan River rafting activity, and chose instead to go to what looked like an oasis - or the Garden of Eden, for sure.  Natural pools that had been enhanced with waterfalls, for a unique water experience, along with picnic facilities.  I put my feet in the water, but kept my CI processor on.  I was the one who held everyone's belongings, and watched as they enjoyed this incredible experience. 

We once had an opportunity to go wading under waterfalls in Pennsylvania, but skipped it.  We just didn't want to do another "deaf while wet" activity. 

And hot tubs also didn't beckon enough for me to remove my CIs.  Water aerobics classes were out too - not worth bothering with.  The more I heard with my CIs, the less I wanted to trade hearing for wetness, no matter how much fun it might seem to be - it wasn't fun if I couldn't hear.  So even if I was by a pool, I didn't even bother putting on a swimsuit anymore - less vulnerable to being tossed in the water - so I felt safer that way as well.

We took some cruises - with the obligatory safety drills. I was delighted to be able to hear most of the instructions with my CIs on, something I couldn't do when I only had hearing aids.  But in the back of my mind was the reality of my situation if the ship actually did have to be evacuated.  This week's tragic news about the Italian cruise ship sinking made me think of this again.

So now, I'm reflecting on all these experiences - 40 years of not hearing when I was wet - and the decisions on whether to do an activity anyway, even if it meant experiencing that isolating silence.  I don't think people with normal hearing understand fully the impact of this breakthrough - a device that will allow a deaf person to hear in the water.  Like everything else having to do with hearing loss, the silence is invisible - and no one thinks about it until they've confronted it themselves.

Now, with this new Neptune processor available, it's beginning to dawn on me - I can do all this wet stuff and hear too?   Yes.

Thursday, January 12, 2012

Cochlear Implant Miracles: Music to my ears

I went to the local movie theater yesterday to see and hear the Metropolitan Opera broadcast of Gounod's FAUST.  These broadcasts are either live simulcasts or rebroadcasts of live Met Opera performances, available in movie theaters throughout the world, and are subtitled. I've done this before, always wondering if I'm going to be able to sit through hour upon hour of opera. Last night was no exception - arriving at 6:30 and finishing up over four hours later, including two intermissions - and the result was the same - enthralled!  What's really amazing about going is that the cost is so reasonable for opera (about $20), but it's also a great way to do music listening practice.  When the opera begins, my brain is always a little tentative about the voices, especially now that I'm bilateral and it has to balance both sides. It sounds good to start, but gets even better the more I listen.  Last night, the closing act and scenes were so intense - both subject matter and music - it was spine-tingling.  One thing about my CI processors, they do a really great job of separating the instruments in the orchestra and the voices as well.  This is a wonderful and natural way to get in that music practice, and it has opened up an entirely new interest for me - and my husband.  Never would have believed it - a deaf person listening to opera for four hours, and loving it.   

Sunday, January 1, 2012

Cochlear Implant Bilateral WOW moment

The strangest thing happened today - this CI old-timer, who has been using a CI for 14 years, and has been bilateral for three years, just had another WOW bilateral realization today. I do believe that my bilateral hearing continues to get "better"! 

No, I wasn't in a testing booth, I was at an antique show - haven't been to one in many, many months. This one was indoors in a cavernous event space - with additional exhibitors outside.  It was after browsing the entire show that I realized that a lot of dealers were talking to me today - and I wasn't even looking at them, but I never asked for a repeat, and for most of them, I answered without even looking back at them.  I didn't think it was necessary to look at their faces to continue conversing with them? 

This is definitely a case of my bilateral hearing continuing to get "better" - and me getting more used to hearing casually - being able to hear people from all directions and wider distances.  And the more that happens, the more casual my reaction - just talking back to them without consciously thinking "WOW."  In fact, it wasn't until AFTER doing this for about two hours that I realized that my behavior had changed.  Oh, my!

Reality check: this doesn't happen all the time, and much depends on acoustics, background noise, voices, etc. - but the reality is that this NEVER happened to me as consistently as it did today - not in decades or miles of antique browsing.